World Press Freedom Day 2025: Journalists reflect

Tomorrow marks World Press Freedom Day, a day started in 1993 to remind governments of their duty to protect freedom of the press. This year, the need for this reminder feels more urgent than ever. 

In the USA, President Donald Trump has been in office for just over 100 days and already we’ve witnessed attempts to attack independent media and dismantle press freedom. Since the beginning of his second term in office, Index has reported on Trump’s war on truth, on the devastating implications on journalism his cuts to the US Agency for Global Media (USAGM) entities including Voice of America and Radio Free Europe/Radio Liberty (RFE/RL) will have, and how he’s worked to remove critical media from the White House.  

Within this context, on World Press Freedom Day, Index has called upon its contributors from around the world, working in countries where they fight for press freedom every day, to reflect on what it means to them and why it is so important we defend it.

SOMALIA
Hinda Abdi Mohamoud, chief editor at Bilan Media 

“As a journalist and the chief editor of Bilan Media, the only all-women newsroom in Somalia, I know that press freedom isn’t just important – it’s essential to our survival and our work. In a place where speaking the truth can be dangerous, where women’s voices have long been silenced or sidelined, press freedom is the tool that allows us to challenge injustice, elevate unheard stories, and advocate for real change. 

That’s why organisations like Index on Censorship are so vital. They support journalists who risk their safety to ensure the truth is told. They defend journalists’ right to report and protect the public’s right to know.”

TURKEY
Nedim Türfent, journalist 

“Freedom of the press is, above all, the first bastion we must defend for the sake of all our other rights and freedoms. Ultimately, in a time and place where the press is not free, it becomes impossible to make our demands for rights visible, known, and heard. If we do not want our rights and freedoms to be dismantled piece by piece, we must be unwavering defenders of press freedom.

The fight for press freedom by international organisations is essential to ensure that the voices of journalists and media outlets facing oppression and persecution anywhere in the world are heard. This cross-border struggle also serves to prevent enemies of press freedom from casually and effortlessly exerting pressure on journalists – as if it were something ordinary. The louder and stronger the voice of international institutions, the more hesitation those enemies will have before violating the rights of journalists.

However, the heavy burden of this struggle should not rest solely on the shoulders of journalists and media organisations. We must remember: when the rights of even a single journalist are violated, the right of thousands of people to access information is also restricted. Shortly, in a world where press and freedom of expression are increasingly eroded, none of our rights or freedoms can be truly guaranteed. It’s that simple.”

AFGHANISTAN
Spozhmai Maani, journalist

“For me, press freedom is not just a principle, it is a lifeline for truth and justice, especially in places like Afghanistan where silence is often enforced with fear. As a journalist who fled persecution for simply telling the truth, I know firsthand how critical it is to protect the voices that hold power to account. Organisations like Index on Censorship are essential in this fight. They give strength, visibility, and protection to those of us who risk everything to speak out. In a world where even established democracies are seeing press freedom eroded, their work is more urgent than ever.”

INDIA
Salil Tripathi, contributing editor at Index on Censorship 

“We only have to look at closed societies from our past and present to know what life is like without press freedom. That some leaders and many people continue to believe in controlling the press – through laws, oligarchs, governments, and intimidation – shows what they are afraid of, and it shows why publications like Index on Censorship continue to matter.”

UGANDA
Danson Kahyana, contributing editor at Index on Censorship  

“Press freedom is the foundation of democracy – the press should be able to report on any matter of public importance without fear or favour. The moment press freedom is threatened, expect democracy to rot and die from within because nobody will be able to say, ‘Look – the emperor is naked!’ So nakedness (corruption, impunity, heavy-handedness, tyranny, etc.) will go unreported, thereby weakening institutions into comatose. In Uganda, we have seen this happen: The emperor called General Yoweri Museveni has gotten worse every year that passes. The more power he amasses by weakening institutions like the parliament and the judiciary the more naked he gets. It is because Ugandans have reported on his myriad abuses of power that the world has come to know that all along, he was a tyrant in democracy’s skin.

Because authoritarian regimes wield immense resources to punish critics as a means of stifling dissent, we need organisations like Index on Censorship to shine a light on tyrants’ assaults on freedom. Like witches and wizards, tyrants do their evil work in the safety of the dark. Index and other organisations like it remind the tyrants that someone is watching them, and that sooner than later, they will be held accountable for their misdeeds. In other words, Index and other organisations like it provide an archive of the tyrants’ atrocities that will be used against them in the courts of law. What is happening to former Philippines President Rodrigo Duterte is a good example – the reports against him caught up with him.  Besides, by providing constant companionship and solidarity to journalists, Index and other organisations like it embolden the defenders of good governance and human rights in their castigation of impunity.”

BELARUS
Jana Paliashchuk, researcher

“While press freedom is a basic right in many countries, for millions of Belarusians it’s been denied for three decades under Aliaksandr Lukashenka’s dictatorship. Speaking out against repression often leads to prison – and journalists are hit hardest.

Today, 40 media workers are behind bars in Belarus for simply doing their jobs. Journalists like RFE/RL’s Ihar Losik and Belsat TV’s Katsiaryna Andreyeva. are serving harsh sentences and enduring torture behind bars. Other journalists were forced into exile, continuing their work from abroad, while Belarusians inside the country risk punishment just for reading independent news.

This may sound grim, but it’s the reality in Belarus, a European country. That’s why defending press freedom matters. It may seem like a solid foundation of society, but it’s as fragile as glass.”

Left speechless: How trauma is leaving children in Gaza unable to communicate

This article first appeared in Volume 54, Issue 1 of our print edition of Index on Censorship, titled The forgotten patients: Lost voices in the global healthcare system, published on 11 April 2025. Read more about the issue here.

Most children say their first word between the ages of 12 and 18 months. But Fatehy, a Palestinian boy living in Jabalia City in Gaza, is four years old and is still barely talking.

When he does speak, he says the same words over and over again – “scared”, “bomb” and “fighters”. While he used to say words such as “mumma” and “bubba”, his language progression has reversed, and now he is mostly silent.

He has been displaced roughly 15 times and experienced several close family deaths, including those of his mother and sister. At one point, he was discovered on a pile of bodies and was presumed dead. He was rescued purely by luck when a family member saw that he was still gently breathing.

His cousin, Nejam, is three years old. His speech is also very limited, and is mostly reserved for the names of tanks, drones and rockets. He has been pulled from rubble several times.

Neither child has access to school, nursery or social activities with friends. Medical treatment is severely limited, and they have been unable to access any of the few speech therapists available. Food scarcity also means they have been unable to learn basic vocabulary about ingredients or meals.

Dalloul Neder, a 33-year-old Palestinian man living in the UK since 2017, is their uncle.

“The only thing they’ve been listening to is the bombing,” he told Index. “That’s why they are traumatised.

“They miss their families, grandparents, mums and family gatherings around the table. They realise something is not right but they can’t express their pain.”

Psychological trauma is extremely common for children living in warzones. This can cause mental health issues such as depression, anxiety and panic attacks, but also communication problems, such as losing the ability to speak partially or fully, or developing a stammer. For younger children such as Fatehy and Nejam, war trauma can impact cognitive development, causing language delays and making it hard to learn to speak in the first place.

In December, the Gaza-based psychosocial support organisation Community Training Centre for Crisis Management published a report based on interviews it had conducted with more than 500 children, parents and caregivers. Nearly all the children interviewed (96%) said they felt that death was “imminent” and 77% of them avoided talking about traumatic events. Many showed signs of withdrawal and severe anxiety. Roughly half the caregivers said children exhibited signs of introversion, with some reporting that they spent a lot of time alone and did not like to interact with others.

Katrin Glatz Brubakk is a child psychotherapist who has just returned to Norway from Gaza, where she was working as a mental health activities manager with Médecins Sans Frontières in Nasser Hospital, Khan Younis. Her team offers mental health support to adults and children, but mainly to children dealing with burns and orthopaedic injuries, mostly from bomb attacks.

She told Index that children tended to present with “acute trauma responses”, while the long-term impacts on their psychological wellbeing were yet to be seen.

In her work, she typically sees two types of responses – either restlessness and being hard to calm down, or becoming uncommunicative and withdrawn. She believes the latter is significantly harder to spot and therefore under-reported.

“We have to take into account that it’s easier to detect the acting-out kids, and it’s easier to overlook the withdrawn kids or just think they’re a bit shy or quiet,” she said.

She commonly saw children experiencing extreme panic attacks due to flashbacks, where any small thing – such as a door closing or their parent leaving a room – could trigger them. She noted they would often let out “intense screams”.

But some children have become so withdrawn they do not scream or cry at all. Some have even fallen into “resignation syndrome”, a reduced state of consciousness where they can stop walking, talking and eating entirely.

Brubakk recalled one “extreme case” of a five-year-old boy who was the victim of a bomb attack and witnessed his father die. He fell completely silent and did not want to see anybody, and also hardly ate.

“When children experience severe or multiple trauma, it’s as if the body goes into an overload state,” she said. “In order to protect themselves from more negative experiences and stress, they totally withdraw from the world.”

Living in a warzone can also mean that children’s “neural development totally stops”, she said, as they lose the opportunity to play, learn new skills, learn language and understand social rules. “The body and mind use all their energy to protect the child from more harm,” she said. “That doesn’t affect the child only there and then, it will have long-term consequences.”

This is made worse by a lack of “societal structures”, such as schools. “[These offer a] social arena, where they can feel success – there’s no normality, there’s no predictability.”

Therapy can be used to encourage children to speak again, particularly with creative methods such as play and drawing therapy. Brubakk explained how through “playful activities” and “small steps”, her team were able to encourage children to communicate.

Recently, she managed this through the creation of a makeshift dolls house. A young girl had been burnt in a bomb attack. Her two brothers had been killed and her two sisters injured, with one of them in a critical state. It was uncertain whether her sister would survive.

The girl wasn’t able to speak about her experiences until Brubakk helped her create a dolls house using an old box, some colouring pens and tape, plus two small dolls the girl had kept from her home. She named the dolls after herself and her sister, and was able to start expressing her grief and fears, as well as her hopes for the future.

“So through a very different type of communication, she was able to express how worried she was about her sister, but also process some of the experiences she had,” said Brubakk.

A report published by the non-profit Gaza Community Mental Health Programme (GCMHP) includes success stories of children who have benefited from creative communication. Alaa, a 12-year-old boy who sustained facial injuries after a bombardment and then later experienced forced evacuation by Israeli forces from Al-Shifa hospital, developed recurring nightmares, verbal violence, memory loss and an aversion to talking about his injuries. A treatment plan of drawing therapy and written narrations of the events helped him to become more sociable, and now he visits other injured children to share his story with them and listen to theirs.

Sarah, meanwhile, is a 13-year-old girl who developed post-traumatic stress disorder and traumatic mutism after having an operation on her leg following a shell attack. She didn’t speak for three months and would use only signals or write on pieces of paper. The GCMHP worked with her on a gradual psychotherapy plan, including drawing and play therapy. After three weeks, she started saying a few words, and she was eventually able to start discussing her trauma with therapists.

Trauma-related speech issues are complex problems that can be diagnosed as both mental health issues and communication disorders, so they often benefit from intervention from both psychotherapists and speech and language therapists.

Alongside developing speech issues due to war, living in a warzone can worsen speech problems in children with pre-existing conditions. For example, those with developmental disabilities such as autism may already have selective mutism (talking only in certain settings or circumstances), and this can become more pronounced.

Then there is behaviour that can become “entrenched” due to their environments, Ryann Sowden told Index. Sowden is a UK-based health researcher and speech and language therapist who has previously worked with bilingual children, including refugees who developed selective mutism in warzones.

“Sometimes, [in warzones,] it’s not always safe to talk,” she said. “One family I worked with had to be quiet to keep safe. So, I can imagine things like that become more entrenched, as it’s a way of coping with seeing some really horrific things.”

She described a “two-pronged” effect, with war trauma causing or exacerbating speech issues, and a lack of healthcare services meaning that early intervention for those with existing communication disorders or very young children can’t happen.

There is an understandable need to focus on survival rather than rehabilitation in warzones, she said, and a lot of allied health professionals, such as occupational therapists, physiotherapists and psychotherapists, are diverted to emergency services.

This was echoed by Julie Marshall, emerita professor of communication disability at Manchester Metropolitan University and formerly a speech and language therapist working with refugees in Rwanda. Her academic research has noted a lack of speech and language therapists in low and middle-income countries (LMICs) in general.

“In many LMICs, communication professionals are rare, resulting in reliance on community members or a community-based rehabilitation workforce underprepared to work with people with communication disorders,” she wrote in a co-authored paper in British Medical Journal Global Health.

For children who already have speech or language difficulties, losing family members who are attuned to their other methods of communication, such as gestures or pointing, can make the issue worse.

“If you are non-verbal, you may well have a family member who understands an awful lot of what we would call ‘non-intentional communication’,” said Marshall. “If you lose the person who knows you and reads you really well, that’s huge.”

In warzones, Marshall and Sowden both believe that speech and language therapy is more likely to be incorporated alongside medical disciplines dealing with physical injury, such as head or neck trauma or dysphagia (an inability to swallow correctly). This belief was mirrored by the work of Brubakk, whose mental health team at Nasser Hospital worked mostly with patients who had been seen in the burns and orthopaedics departments.

One of the most valuable things that can be done is to train communities in simple ways to help children who may be living with a speech or language difficulty, Marshall believes, shifting away from treating a single individual to trying to change the general environment.

“There are lots of attitudes around communication disabilities that could be changed,” she said. For example, it is often misjudged that children with muteness may not want to talk, and they are subsequently ignored rather than patiently and gently interacted with.

Despite a lack of healthcare provision, there are some professionals on the ground in Gaza. In 2024, the UN interviewed Amina al-Dahdouh, a speech and language therapist working in a tent west of Al-Zawaida. She said that for every 10 children she saw, six suffered from speech problems such as stammering. In a video report, al-Dahdouh held a mirror up to children’s faces as she tried to teach them basic Arabic vocabulary and show them how to formulate the sounds in their mouths.

But the destruction of medical facilities such as hospitals and a lack of equipment have made it difficult for professionals to do their jobs. Mohammed el-Hayek is a 36-year-old Palestinian speech and language therapist based in Gaza City who previously worked with Syrian child refugees in Turkey.

“Currently, there are no clinics or centres to treat children, and there are many cases that I cannot treat because of the war, destruction and lack of necessary tools – the most important of which is soundproof rooms,” he told Index. “Before the war, I used to treat children in their homes.”

Soundproof rooms can be used by speech and language therapists to create more private, quiet and controlled spaces that reduce distracting external noises including triggering sounds such as gunfire or bombs.

The most common issue he has encountered is stammering, which he says becomes harder to tackle the longer it is left untreated.

“Children are never supported in terms of speech and language,” he added. “[It is] considered ‘not essential’ but it is the most important thing so that the child can communicate with all their family and friends and not cause [them] psychological problems.”

For many of these children, the road to recovery will be long. Mona el-Farra, a doctor and director of Gaza projects for the Middle East Children’s Alliance, told Index that the “accumulation of trauma” caused by multiple bombardments meant that even those receiving psychological support were offered little respite to heal.

One glimmer of hope is that cultural barriers around trauma appear to be lifting, which has encouraged people to stop self-censoring around their own mental health.

“There is no stigma now [around mental health],” said el-Farra. “The culture used to be like this, but not anymore. You can see that 99% of the population has been subjected to trauma. [People] have started to express themselves and not deny it.”

At the time of publishing, the ceasefire between Israel and Hamas had broken down and bombardment had restarted. When a permanent ceasefire is finally established and healthcare provision in Gaza can be rebuilt, there will need to be a concerted effort to support children with their psychological and social rehabilitation as well as their physical health. Hopefully then they can start to come to terms with their experiences and tell their stories – otherwise, they could be lost forever.

Whistleblowers silenced over failings in NHS pregnancy care

This article first appeared in Volume 54, Issue 1 of our print edition of Index on Censorship, titled The forgotten patients: Lost voices in the global healthcare system. Read more about the issue here. The issue was published on 11 April 2025.

In October 2022, Dr Bill Kirkup, who was responsible for undertaking investigations into maternity scandals at hospitals in the north-west and south-east of England, wrote an open letter to the UK health and social care secretary and the chief executive of the National Health Service quoting a bereaved mother: “When your baby dies, it’s like someone has shut the curtains on life, and everything moves from colour to darkness.”

Kirkup continued: “How much more difficult must it be if the death need not have happened? If similar deaths had occurred previously but had been ignored? If the circumstances of your baby’s death were not examined openly and honestly, leaving the inevitability of future recurrence hanging in the air?”

His words were meant to draw a line under the scandals, but they proved horribly prophetic. Kirkup was recently called to give evidence at the inquest into the death of Ida Lock, who was resuscitated after birth at the Royal Lancaster Infirmary in November 2019 but died a week later from brain injuries sustained during delivery due to a lack of oxygen.

The hospital, part of the University Hospitals of Morecambe Bay NHS Foundation Trust (UHMBT), initially denied any failings but was ultimately forced to recognise that mistakes had yet again been made. A whistleblower came forward in February to claim that warnings had not been heeded, causing the inquest to be delayed.

The whistleblower, former inspector Ian Kemp, claimed health watchdog the Care Quality Commission (CQC) “watered down” his report after he was asked to investigate maternity care at the NHS trust following the death of baby Ida. At the time, the CQC’s lawyers told the coroner’s court the allegations were “not recognised” by the watchdog.

The five-week inquest has now finished, with coroner Dr James Adeley concluding that Ida’s death was caused by the “gross failure” of three midwives to “provide basic medical care”. In a statement, Tabetha Darmon, chief nursing officer at UHMBT, said: “Losing a child is tragic and our heartfelt condolences go out to Ida’s parents, family and loved ones. We are truly sorry for the distress we have caused. We accept that we failed Ida and her family and if we had done some things differently and sooner, Ida would still be here today.” She also apologised for “the way investigations into Ida’s death have been conducted since 2019”, adding that the trust takes the coroner’s conclusions “very seriously”, and it will “do everything [it] can to prevent this from happening to another family”.

Recent scandals that have blighted UK hospitals reveal a horrific pattern of cover-up and secrecy in the NHS. Time and time again, concerns over the treatment of the most vulnerable in society – babies and women in particular – have been silenced or ignored by senior managers and clinicians.

“A series of failures at almost every level”

The investigation into the UHMBT in 2015 found that 11 babies and one mother died at Furness General Hospital between 2004 and 2013 as a result of failures in clinical competence, poor working relationships between medical staff and a resistance to investigating serious incidents. Kirkup concluded: “Our findings are stark and catalogue a series of failures at almost every level – from the maternity unit to those responsible for regulating and monitoring the trust.”

Published seven years later in October 2022, the report of the investigation into East Kent Hospitals University NHS Foundation Trust found that 45 babies had lost their lives due to failures of teamwork, professionalism, compassion and listening, noting a resistance to listening to parents’ concerns. Kirkup wrote: “It is too late to pretend that this is just another one-off, isolated failure, a freak event that ‘will never happen again’.”

Meanwhile, an unprecedented review of cases at the Shrewsbury and Telford Hospital NHS Trust spanning two decades was also published in 2022 and found that more than 200 babies and nine mothers died unnecessarily. The chair of the review, senior midwife Donna Ockenden, said her report was “about an NHS maternity service that failed. It failed to investigate, failed to learn and failed to improve, and therefore often failed to safeguard mothers and their babies at one of the most important times in their lives”.

Speaking to Index, Ockenden said there was an immediate need for investment in perinatal services (the period of time between becoming pregnant and up to a year after giving birth) – but this is not the whole story. “There has to be an absolute commitment to listening to women, hearing women and acting on what they tell you,” she said. “It’s fair to say that for many staff in the NHS, not just maternity, they do not currently have the time to care. But there are occasions when there would be time and still women aren’t listened to.”

She is now carrying out a review into maternity services at the Nottingham University Hospitals NHS Trust, which will examine more than 2,500 cases of death or serious harm in the maternity unit over a 10-year period from 2012 to 2022. Her inquiry, which had been due to report at the end of this year, will be extended until June 2026 after 300 new cases were discovered by a coroner.

Even staff at Nottingham University Hospitals NHS Trust were not necessarily protected when they chose to have their babies delivered by their colleagues. Jack Hawkins, who worked as a doctor at the trust, and his wife Sarah, who was employed there as a senior physiotherapist, lost their daughter Harriet in 2016 when she was stillborn. The trust admitted that a series of errors by midwives and doctors had led to Harriet dying in the womb and agreed to a £2.8 million payout (roughly $3.6 million) in 2021. The couple are now at the centre of the campaign for justice for families affected by the Nottingham scandal and have called for full transparency and accountability.

Systemic issues in maternity care

The inquiries that have already published their reports identified a common set of problems with senior clinicians and hospital managers failing to listen to parents or to act when the alarm was raised by staff. We wait to see if Nottingham will be any different, though the NHS’s track record invites scepticism. This is not a historical story; it is an ongoing crisis with new details and new scandals emerging all the time.

Maxwell Mclean, the former chair of Bradford Teaching Hospitals NHS Foundation Trust, is currently pursuing an employment tribunal over unfair dismissal, claiming the trust was unhappy after he raised concerns about baby deaths in 2021. Meanwhile, a review into baby deaths at University Hospitals of Derby and Burton NHS Foundation Trust published its report in 2024, finding that national guidelines for monitoring foetal movements had not been followed and identifying “care issues” that could have contributed to loss of life in 150 cases.

Some parents want a full national inquiry into maternity services. Neil and Katie Russell, whose baby Poppy died in April 2021 at The Princess Royal Hospital in Telford, have called for a nationwide investigation and have been joined by other bereaved parents from across the country. The Russells believed the increased scrutiny on the Telford hospital would mean their baby would be safe, but she died while the Ockenden inquiry was being carried out. In 2023, a coroner ruled that Poppy’s death was preventable and said effective monitoring of her foetal heart rate had not happened.

In May 2024, the UK’s All-Party Parliamentary Group (APPG) on Birth Trauma published its report Listen to Mums: Ending the Postcode Lottery in Perinatal Care. It recommended the creation of a maternity commissioner post, who would report directly to the prime minister and develop a national maternity improvement strategy.

Four months later, the CQC reported that harm at maternity units was at risk of becoming normalised following a review of 131 units across England. The pattern of criticism was familiar: staffing shortages, problems with equipment, cramped wards, inconsistencies in reporting incidents and poor leadership and management leading to a blame culture. Mothers and babies from ethnic minority backgrounds were found to be at increased risk, with a lack of support for women whose first language was not English.

The maternity units investigated by the CQC had not been inspected since 2021. They amounted to two-thirds of the total number of units in the country – and of those, nearly half were rated inadequate or in need of improvement and 65% were judged to be failing on the single issue of safety.

Threatened for speaking out

The investigations carried out by Kirkup and Ockenden and the recent CQC review build a picture of a systemic failure in maternity services across the country. But this is often compounded by a culture of secrecy, cover-up and blame.

And this is not confined to maternity services. It is no coincidence that NHS trusts repeatedly found to be dysfunctional often have a record of silencing those trying to raise the alarm. It is helpful to look at the problems faced by the NHS as either horizontal or vertical. The horizontal problems are those facing services in particular areas of care, such as for older people, breast screening or maternity. But then there are the vertical problems faced by a specific NHS trust, where both professionals and patients claim a toxic culture runs from top to bottom.

Radiographer Sue Allison claimed she was bullied, ostracised and blocked from promotion after raising concerns in 2012 about malpractice in the breast screening unit at Royal Lancaster Infirmary (part of UHMBT) and cancer diagnoses being missed. Instead of addressing the potentially fatal consequences of failures in the hospital’s breast screening unit, Allison claims managers victimised her for blowing the whistle and eventually forced her to resign and abandon the career she loved.

Allison later successfully challenged the gagging order she had felt pressured to sign, and in 2019 health secretary Matt Hancock used her case to propose a ban on the use of non-disclosure agreements in the NHS.

Speaking at the time to The Daily Telegraph, Hancock said: “We stand with whistleblowers. Making someone choose between the job they love and speaking the truth to keep patients safe is an injustice I am determined to end.” Six years later, this ban is yet to be enforced.

Allison told Index that UHMBT later offered her an advisory job working with the director of nursing, but she turned it down because of the confidentiality clause contained in the contract. Instead, she successfully stood for election as a public governor of the trust. According to government guidance, the holder of this role “represents the public’s interests and works to ensure that an organisation meets the needs of its community”. However, Allison claims that when she and two other governors began to hold the trust to account, they were sidelined and eventually forced out.

Allison told Index: “Some trusts just have a toxic culture. After more than 30 years of service as a radiographer, I saw my career destroyed because I tried to raise the alarm about potential serious harm to women in the care of the Morecambe Bay trust.

“My subsequent attempts to hold the trust to account over the following 10 years were frustrated because the institution did not genuinely believe in transparency and was determined to protect its reputation, even to the detriment of the patients it had a duty to care for and protect.”

At the time of her resignation in 2023, UHMBT chair Mike Thomas was reported as saying: “We respect Sue’s decision to stand down as a trust governor and thank her for her contribution… during her time on our Council of Governors.” He offered Allison an exit interview to discuss further issues.

“We wish to make it clear that bullying and/or harassment has absolutely no place within our trust. All feedback and concerns are taken seriously and we actively work to improve on any issues raised,” he added.

Not all whistleblowers are staff, and Allison has supported patients putting their heads above the parapet. One of these cases is Diana Merrick, who had surgery at Westmorland General Hospital (also part of UHMBT) after treatment for breast cancer.

Merrick, an artist from Cumbria, alleges that the routine operation she was booked in for was changed to a more complex one at the last minute. Following the surgery, she developed complications and raised concerns but claims these were ignored. Five months later, she had to have an emergency operation and is now waiting for breast reconstructive surgery.

She says she was characterised as “anxious”, “demanding” and a “serial complainer”. She has complained to UHMBT, the General Medical Council (GMC) and the Parliamentary and Health Service Ombudsman.

She told Index: “If the trust continues to dismiss legitimate concerns, patient safety will suffer, and preventable deaths will continue. I initially raised concerns on the advice of a staff member, solely to help the hospital and protect others from harm. I was shocked when the hospital responded with contempt and tried to silence me.”

Index put Merrick’s claims to UHMBT but the trust was unable to respond by the time of publication for reasons of patient confidentiality.

Another case that Allison championed was that of Peter Duffy, a consultant surgeon in urology at UHMBT. In 2015, Duffy had blown the whistle to the CQC about dangerous practices within UHMBT’s urology services, which had led to 520 cases of serious harm. NHS England ended up commissioning an investigation into the department.

The trust was later forced to pay out £102,000 (roughly $132,000) in damages to Duffy for constructive dismissal. In 2023, the surgeon announced he would be leaving the medical profession entirely after 43 years of service as a result of being “hunted” out of the NHS.

Tommy Greene has tracked the whistleblowing cases at UHMBT, first as a local reporter with The Westmorland Gazette and then as a journalist with Computer Weekly, the publication which broke the story of the Post Office IT scandal.

He told Index: “A culture of secrecy and cover-up appears to have persisted at the Morecambe Bay trust well after the revelations of its historic maternity scandal came to light. There is no doubt this has contributed to the trust’s ongoing problems, which show little sign of going away.

“Over the last decade, it has become clear that similar practices to those previously uncovered at the trust’s maternity services – burying evidence of healthcare failings, poor clinical governance and reprisals against multiple whistleblowers – have led to further serious harms across several more departments, including Morecambe Bay’s breast screening, urology, and trauma and orthopaedics units.

“Disproportionate focus on reputation management – in particular, on advancing a ‘turnaround’ narrative at UHMBT – has led to avoidable suffering for patients and families, the trashing of various careers and an overall loss of public confidence in the management of local healthcare services. Far from promoting the

NHS’s stated ‘freedom to speak up’ values, these episodes are likely to have a chilling effect on workers who are keeping the service going at a time of unprecedented pressure.”

Looking to the future

The case of Lucy Letby, the nurse convicted of murdering seven babies at the Countess of Chester Hospital and attempting to kill six more, has brought whistleblowers in the NHS into sharp focus. Doubt has been cast on the safety of the convictions by an independent panel of experts put together by Letby’s solicitors. But what is not in doubt is that between June 2015 and June 2016, babies were harmed and died unnecessarily, just as they did in scandals at other hospitals around the country.

A judicial inquiry into the case is being carried out by Lady Justice Thirlwall, who will report in the autumn. The former chairman of the Countess of Chester Hospital NHS Foundation Trust, Sir Duncan Nichol, has already admitted the hospital “failed to keep babies safe in their care” and has apologised, recognising that failures caused “unimaginable grief for the families whose babies died”.

The whistleblowing charity Protect recently estimated that the cost of the Letby case, including the Thirlwall Inquiry and estimated compensation to the bereaved families, is likely to run to £40 million (roughly $50 million). In a report which also looked at the Post Office scandal and the collapse of construction company Carillion, the charity made a series of recommendations. These included placing a duty on employers to investigate whistleblowers’ concerns, increasing whistleblower protection to everyone in the workplace, addressing the consistent failures at board level and ensuring implementation of recommendations from inquiries.

The government is already looking at stronger protections for NHS whistleblowers, including proposals to ban managers who silence whistleblowers from working in the NHS and to make them accountable for responding to patient safety concerns. The recent decision to scrap NHS England could also provide an opportunity to increase transparency through organisational restructure.

It is clear that policy change would help. However, in many cases the whistleblowers leading the campaigns for justice are the bereaved parents themselves and no amount of workplace protections would ensure their voices were heard.

What frustrates campaigners is that many of the statutory frameworks are already in place. The NHS regulator, the CQC, is there to ensure individual trusts are doing their jobs. It is now 10 years since Sir Robert Francis QC published his Freedom to Speak Up review into whistleblowing in the NHS. This led to the establishment of the National Guardian’s Office and the creation of Freedom to Speak Up Guardians. There are now 1,200 guardians whose job is to encourage a culture of openness free from fear of reprisals from managers.

One paragraph in Francis’s report still stands out: “There are many reasons why people may feel reluctant to speak up in any industry. For example, they may be concerned they will be seen as disloyal, a ‘snitch’ or a troublemaker. Two particular factors stood out from the evidence we gathered: fear of the repercussions that speaking up would have for an individual and for their career; and the futility of raising a concern because nothing would be done about it.”

Beyond the questions of transparency and accountability lies the fundamental problem of resourcing – in many hospitals there are simply not enough obstetricians and midwives. The various reviews into baby deaths have also revealed a lack of specialist training and an almost cult-like obsession with “natural” childbirth.

But none of this explains the other consistent findings of these reports: the poor communication between health professionals, the failure to learn from past mistakes, and the lapses in oversight. And nothing excuses the most damning judgment that haunts each of these maternity scandals: the lack of compassion for the parents who just wanted to know why their baby had died.

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