Contents – The forgotten patients: Lost voices in the global healthcare system

Contents

Modern medicine is a wonderful thing. Before Edward Jenner’s development of the smallpox vaccination in 1796, infectious diseases and viruses killed millions. The introduction of anaesthetic gases during surgical procedures in 1846 eliminated the excruciating pain of surgery. And before Alexander Fleming’s discovery of penicillin in 1928, people died unnecessarily from cuts and grazes.

But the benefits of modern medicine are not felt equally around the world. In this issue, we explore the forgotten patients in global healthcare settings – the marginalised groups who fall through the cracks or are actively shut out of healthcare provision, then ignored or silenced when they raise concerns.

Just like free speech, healthcare is an indisputable human right. But for many around the globe, both these rights are being removed in conjunction with each other. Through telling their stories, this edition aims to shine a light on these injustices and – we hope – empower more people to speak up for the right to health for themselves and others.

Up Front

A bitter pill to swallow: Sarah Dawood
Not all healthcare is made equal, and pointing this out can have serious consequences

The Index: Mark Stimpson
From elections in Romania to breaking encryption in the UK: a tour of the world’s most pressing free expression issues

Features

Rape, reputation and little recourse: Samridhi Kapoor, Hanan Zaffar
Indian universities have a sexual violence problem that no one is talking about

Georgian nightmare: Ruth Green
Russian-style laws are shutting down more conversations in Georgia, with academia feeling the heat

Botswana’s new era: Clemence Manyukwe
From brave lawyer to president – could the country’s new leader put human rights front and centre?

Venezuela’s prison problem: Catherine Ellis
The disputed new president has a way of dealing with critics – locking them up

Forbidden words: Salil Tripathi
The Satanic Verses is back in India’s bookshops. Or is it?

The art of resistance: Alessandra Bajec
A film, a graffiti archive and a stage play: three works changing the narrative in Tunisia

A tragic renaissance: Emily Couch
The pen is getting mightier and mightier in Ukraine

In the red zone: Alexandra Domenech
Conscription is just one of the fears of an LGBTQ+ visual artist in Russia

Demokratia dismantled: Georgios Samaras
The legacy of the Predator spyware scandal has left a dark stain on Greece

Elon musk’s year on X: Mark Stimpson
The biggest mystery about Musk: when does he sleep?

Keyboard warriors: Laura O’Connor
A band of women are fighting oppression in Myanmar through digital activism

Behind the bars of Saydnaya prison: Laura Silvia Battaglia
Unspeakable horrors unfolded at Syria’s most notorious prison, and now its survivors tell their stories

Painting a truer picture: Natalie Skowlund
Street art in one Colombian city has been sanitised beyond recognition

The reporting black hole: Fasil Aregay
Ethiopian journalists are allowed to report on new street lights, and little else

Special Report: The forgotten patients - Lost voices in the global healthcare system

Whistleblowing in an empty room: Martin Bright
Failures in England’s maternity services are shrouded in secrecy

An epidemic of corruption: Danson Kahyana
The Ugandan healthcare system is on its knees, but what does that matter to the rich and powerful?

Left speechless: Sarah Dawood
The horrors of war are leaving children in Gaza unable to speak

Speaking up to end the cut: Hinda Abdi Mohamoud
In Somalia, fighting against female genital mutilation comes at a high price

Doctors under attack: Kaya Genç
Turkey’s president is politicising healthcare, and medics are in the crosshairs

Denial of healthcare is censoring political prisoners – often permanently: Rishabh Jain, Alexandra Domenech, Danson Kahyana
Another page in the authoritarian playbook: deny medical treatment to jailed dissidents

The silent killer: Mackenzie Argent
A hurdle for many people using the UK’s National Health Service: institutional racism

Czechoslovakia’s haunting legacy: Katie Dancey-Downs
Roma women went into hospitals to give birth, and came out infertile

An inconvenient truth: Ella Pawlik
While Covid vaccines saved millions of lives, those with adverse reactions have been ignored

Punished for raising standards: Esther Adepetun
From misuse of money to misdirecting medicines, Nigerian healthcare is rife with corruption

Nowhere to turn: Zahra Joya
Life as they know it has been destroyed for women in Afghanistan, and healthcare provision is no different

Emergency in the children’s ward: Shaylim Castro Valderrama
The last thing parents of sick children expect is threats from militia

Comment

We need to talk about Sudan: Yassmin Abdel-Magied
Would “a battle of narratives” give the war more attention?

RFK Jr could be a disaster for American healthcare: Mark Honigsbaum
An anti-vaxxer has got US lives in his hands

The diamond age of death threats: Jemimah Steinfeld
When violent behaviour becomes business as usual

Free speech v the right to a fair trial: Gill Phillips
Are contempt of court laws fit for the digital age?

Culture

An unjust trial: Ariel Dorfman
A new short story imagines a kangaroo court of nightmares, where victims become defendants

Remember the past to save the future: Sarah Dawood, Diane Fahey
Published exclusively, the issues of antisemitism and colonialism are recorded through poetry

Where it’s more dangerous to carry a camera than a gun: Antonia Langford
A singer meets filmmakers in Yemen, and both take risks to tell her story

The fight for change isn’t straightforward: Shani Dhanda
The Last Word, on exclusion and intersectional discrimination

Shortlists announced for the 2023 Freedom of Expression Awards

For the last 22 years Index on Censorship has been proud to host the annual Freedom of Expression Awards. It’s an opportunity to celebrate the brave artists, journalists and campaigners from around the world who fight for freedom of expression in the most challenging of circumstances. There are some truly incredible nominees for the awards this year, who more than ever, are challenging the repressive regimes they live under to fight for the rights of ordinary people.

2023 has seen the continuation of Russia’s war on Ukraine with its horrific consequences for the people of Ukraine and the severe repression for those speaking out against the war in Russia. The CCP in China continues to repress journalists, particularly those who attempt to uncover the crimes against the Uyghur people, and activists and protesters for women’s rights in Iran and Afghanistan face vicious attacks from the authorities.

The shortlisted candidates for the Arts award are Visual Rebellion, a platform for sharing the work of photographers, filmmakers, and artists documenting the protests in Myanmar; Iranian rapper Toomaj Salehi, who sings about injustice and the abuse of civil society by the authorities, for which he has been imprisoned; and Ukrainians, curator Maria Lanko and artist Pavlo Makov, who have worked to protect Ukrainian art in the face of Russian war crimes.

The shortlisted candidates for the Campaigning award are Matiullah Wesa from Afghanistan who has worked to ensure all children, but especially girls, have access to education and educational materials; Russian student Olesya Krivtsova who has publicly opposed Russia’s war on Ukraine and has fled the country to avoid up to 10 years’ imprisonment; the Xinjiang Victim’s Database, which records the incarceration and persecution of the Uyghur population in Xinjiang province; and the Africa Human Rights Network which works to support and protect human rights defenders across the Great Lakes region of Africa.

And the shortlisted candidates for the Journalism award are Bilan Media, Somalia’s first women-only media organisation and newsroom; Mohammed Zubair, co-founder of the Indian fact-checking platform Alt News which has led to threats after challenging misinformation; and Afghan Mortaza Behboudi, in exile in France, who continues to travel to Afghanistan every month to work with different media outlets to ensure the voices of Afghans are heard.

The Freedom of Expression Awards are a time to remind ourselves of the importance of freedom of expression and to commit ourselves to protecting our own freedom of expression. It is easily lost but hard fought for. We must not forget that.

Nominees for the 2023 Freedom of Expression Awards – Journalism

Bilan Media (Somalia)

Bilan Media is Somalia’s first women-only media organisation and newsroom, which aims to challenge gendered threats against women in journalism, as well as covering under-reported issues. 

It is incredibly dangerous to be a journalist in Somalia. In 2022, Somalia topped the Committee to Protect Journalists’ Global Impunity Index for the eighth year running. Journalists are a specific target of militant Islamist groups, especially Al Shabaab, and are regularly shot, imprisoned and physically harmed by the authorities and other powerful groups. Women face a range of other significant threats that prevent many from being able to work safely. In a society where women are marginalised and in a country where huge swathes of territory are controlled by groups linked to Al Qaeda and Islamic State, Bilan Media believed the only way female journalists can fight censorship and find a degree of freedom of expression was to set up the country’s only all-women media house. In addition to distributing their films and reports on Somali TV, radio and websites, they have established partnerships with international media outlets, such as The Guardian, BBC and El Pais.  

As a career for women in Somalia, journalism is considered to be “the bottom of the pile”. This perception shaped how Bilan approached the type of journalism they focused on. In order to reduce verbal and sexual harassment and the threat of physical attack, Bilan decided to work as “Mobile Journalists” where they use mobile phones and other small equipment for their reporting so they are less visible to a hostile public and could escape the scene quickly if needed. 

Bilan focuses on stories that are not represented in the broader media coverage in Somalia. These include stories about people living with HIV/AIDS, girls who have recently undergone Female Genital Mutilation (FGM); orphans who were abandoned when their orphanage closed due to the COVID-19 pandemic only to return with babies of their own after being raped or forced into temporary marriages; female opioid addicts; the mistreatment of people living with albinism; underage girls sold into marriage and young children forced into hard labour to earn money for their families.

Mohammed Zubair (India)

Mohammed Zubair, co-founder of AltNews. Photo: Mahesh Shantaram / www.thecontrarian.in

After co-founding the leading Indian fact-checking platform, Alt News, Mohammed Zubair faced significant threats after challenging mis/disinformation propagated by influential members of the ruling party.

Mohammed Zubair and others decided to found AltNews.in, a portal dedicated to busting fake news to address flaws in the Indian media ecosystem, such as overt political pressure on media outlets and opaque methods by which government funding was awarded to media outlets. Alt News’ goal was to dismantle propaganda networks in a manner that could be used by other publishers. Alt News’ approach focuses on political fact-checking to scrutinise claims made by political parties, leaders and other persons in positions of authority; debunking social media rumours; and examining media misinformation and bias.

Alt News aims to foster a stronger and more vibrant media environment by amplifying dissenting voices and creating barriers to prevent mis/disinformation from spreading. As a result, the outlet has faced considerable social, litigious and political pressure to halt their work. Using both his personal twitter account, as well as the outlet’s website, Mohammed Zubair and his colleagues have reported on inter-communal violence in India, the actions of vigilante groups, as well as the use of social media platforms to amplify hate speech. 

In June 2022, following a tweet exposing a national spokesperson of the BJP making hateful and Islamophobic utterances on national TV, Mohammed Zubair was arrested by the Delhi and Uttar Pradesh state police. Based on an earlier satirical tweet posted in 2018 and reported by another user, Zubair was charged with "promoting enmity between different groups on grounds of religion, race, place of birth, residence, language, etc." and “deliberate and malicious acts, intended to outrage religious feelings of any class by insulting its religion or religious beliefs”. It has been reported that whenever Zubair was granted bail on one case another FIR (or First Information Report) would be lodged against him. This led to six FIRs being lodged against Zubair, resulting in him being caught in a 24 day cycle of arrest, bail and re-arrest. The following month, the Indian Supreme Court granted Zubair bail and ordered his release, as there was no justification for keeping him in custody.

Mortaza Behboudi (Afghanistan/France)

After being forced to leave Afghanistan in his youth due to previous threats as a result of his reporting, Mortaza Behboudi was detained by the Taliban’s General Directorate of Intelligence on 7 January 2023 in Kabul.

At the age of two Behboudi’s family fled Afghanistan to live in Isfahan in Iran. In his early twenties, As a result of his work, Behboudi received a number of death threats from the Taliban, which resulted in him having to leave the country for France. After learning French, he continued his work, helping to co-found Guiti News, the first refugee and French-led news media in France, for which he was coined one of Forbes 30 under 30 in the media category.
 
Since the Taliban takeover of Afghanistan, Behboudi had been travelling back to Afghanistan every month to work with different media outlets, such as Business Insider, France 2, TV5 Monde, France 24, Liberation, La Croix, and many more. Notable works include "They will not erase us, the Fight of the Afghan Women", which was produced in 2022 and broadcasted on Mediapart and Arte, and "Les petites filles afghanes vendues pour survivre" for France 2.
 
On 7 January 2023, members of the Taliban’s General Directorate of Intelligence (GDI) detained Behboudi in Kabul. According to CPJ, Behboudi was detained in the GDI’s headquarters in Kabul. On 6 February Taliban spokesperson Zabihullah Mujahid confirmed to Voice of America that Behboudi was detained by the GDI, saying that details of his case could not be made public “but he is fine and he was treated well.”

A year in freedom of expression

[vc_row][vc_column][vc_single_image image="120168" img_size="full" add_caption="yes"][vc_column_text]As we all start to think about the forthcoming holidays and the end of the year it’s a good opportunity to reflect on what happened in 2022. For regular readers you’ll know I have at various points over the last year despaired at the sheer volume of news. Too many crises, too many heartbreaking stories, too many people and families destroyed by the actions of tyrants. There has been so much news it is easy to forget the range of issues that have impacted human rights and freedom of expression around the world. So it would be remiss of me, in my last blog of the year, not to remind you of some the key events of 2022 (forgive me, there are many missing). The year started with Abdalla Hamdok resigning as the Prime Minister of Sudan after three years of pro-democracy protests, where dozens were killed. A few days later, a week of government clampdown in Kazakhstan led to the deaths of over 220 people with over 9,000 people arrested. In February we thought the biggest issue for Index would be the attempted sportswashing of the CCP as they hosted the Winter Olympics. Unfortunately that was not to be the most devastating act by a totalitarian regime in 2022. By the end of the month Putin’s government had launched an illegal invasion into Ukraine, causing the largest refugee crisis in Europe since the end of World War Two. Nearly 7,000 civilians have been killed during the war and over 13,000 Ukrainian troops and over 10,000 Russian troops have made the ultimate sacrifice. In response to the war, media freedoms and freedom of expression have been completely curtailed in both Russia and Belarus with thousands detained. Events in Ukraine rightly continued to dominate the news agenda for the rest of the year. But this in turn provided cover for dictators and tyrants around the world to move against their people with limited global outcry. March brought more extremism and death. In Afghanistan an IS suicide bomber killed 63 people at a mosque. April was dominated by events in Ukraine and the impact on food and fuel inflation leading to sporadic protests around the world. In June a suspected IS attack on a church in Nigeria saw at least 40 people killed. In July anti-government protests in Sri Lanka led to the deaths of 10 protesters, with over 600 arrested. In August our friend Sir Salman Rushdie was attacked by an extremist. We are incredibly grateful that he survived and remain in contact with him as his long recovery continues. In September the United Nations published their report about the CCP’s treatment of the Uyghur community in Xinjiang province - declaring that their treatment may constitute crimes against humanity. September also saw clashes on the Armenia-Azerbaijan border resulting in nearly 300 deaths in a three-day period. This was followed within days by similar clashes on the Kyrgyzstan - Tajikistan border with dozens killed. On 16 September Masha Amini was murdered by state forces in Iran for not having her hair covered appropriately. This horrendous act of state terror has led to country wide protests, at least 448 people have been killed in the protests and over 18,000 people have been arrested across 134 cities and towns in Iran. These demonstrations continue today as the Iranian government begins executing protestors. These events are truly some of the most egregious of 2022 and we stand with Amini and all those protesting in her name. In October Xi Jinping was appointed for an unprecedented third term as general secretary of the CCP, consolidating his grip on power. And a couple of weeks later Elon Musk purchased Twitter for $44billion, we still don’t know what the final effect on global free speech will be… At the end of October a terror attack in Mogadishu killed over 100 people. November saw the start of one of the most determined efforts at sportswashing of an appalling human rights record with the beginning of the football World Cup in Qatar. Protests were banned and football players were forbidden from wearing LGBT+ symbols while playing. And that gets me to December - in the last fortnight we have seen 1,700 people flee violence in South Sudan which has already killed 166 people. Chinese diplomats have left the UK after a protester was beaten by Chinese staff at a consulate in Manchester earlier this year. Twitter has banned journalists who have criticised Elon Musk and Jimmy Lai was sentenced to five years in jail in Hong Kong, as he awaits his trial for being a democracy campaigner. And yet there is still a fortnight to go before we close the door on 2022 - I pray that it’s a quiet fortnight for those on the front line. As we approach the end of 2022 my prayers will be with the people of Ukraine as they remain on the front line in the fight for freedom - especially as the temperature plummets. But the women of Iran won’t be too far from my thoughts too. So to you and yours from the Index family, Happy Christmas, Chag Sameach and Happy Holidays and here’s to a better 2023![/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][three_column_post title="You may also wish to read" category_id="41669"][/vc_column][/vc_row]